Nicholas was born with a hypospadias, two urethra holes. a simple fix supposedly, but somehow even this was botched up. He is looking at another surgery after this July to recorrect what was to be his recorrection. The skin didn't heal flat or in the manner it was supposed to. The one hole they tried to close up has reopened again, and he wont be a straight shooter yet. He also had his scrotum reattached and things lengthened. I know this isn't the most significant surgery out there. Babies are on the Operating table hours after birth for harder and worse things than this, but it is hard to be there when they put that mask on your baby and he is looking at you with wide open eyes scared.
He also has an asthma issue. Any time he has a cold he is put onto a nebulizer a few times a day. It is to the point that he loves to put the mask on and wont pull at it. He knows that it is going to help him, which is great, yet sad to know. His first treatment was when he was not wuite 4 months old due to a bad cold that stuck in his chest that the drs couldnt rule out RSV. Since then we have to pull this out every few months to use, sometimes for weeks at a time.
Due to the inhaler and steroids he is a little bit smaller than kids his age. He is fitting quite comfortably in 12 month clothes, sometimes even 9 month clothes. Regardless of his size he has the spitfire of a normal 20 month old when it comes to his attitude. He is the first to scream sTOP of Mine when the other kids are playing rough. He also has the boys running and jumping on chairs when he comes after them with play swords or the light sabers. He just figured out this week how to climb onto chairs and our bed. He is in a big boy twin bed for the last three months. He also is starting to use the potty. I just can't imagine what it would be like not to have any diapers in the house, we've had them for over 7 years.
Because he wasn't walking yet last fall he really wasn't able to experience the outside like the other kids have in the past, so when we go out now everything is what's that? or where did it go? as things blow around in the wind. He loves everything about balls: hitting, kicking throwing, and has one mean golf and hockey swing. His second favorite is sand...Just sitting and watching it fall through his fingers is sheer amazement. The wind through the dead leaves on the front tree leave him just staring for ten minutes at a time. He is all about seeing his world for the first time, something that the other three kids really never did. So I am once again seeing the small things around me . It is truely an uplifting experience.
1 comment:
Beautiful story! You had me in tears...I am glad the little guy is doing alright considering all he has been and all he will have to go through in the future...
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